How Parkinson's patients help shape research

By Melody Hansen, Lex Kleren Switch to German for original article

What happens when you not only treat people with Parkinson's, but also listen to them? A story about self-determination, research that works - and about what those affected really need.

Flashback to 4 April 2025: The sun is shining as if it were already summer and numerous Parkinson's patients and relatives have gathered at the Centre Culturel Atert in Bartringen to take part in the conference "Parkinson's: Quality of life through participation". Parkinson's patient Rike Sonnenschein is on stage. "I have to say, your name ["Sunshine" in German] suits you very well, " says a man from the audience, expressing what many are thinking right now. Because she embodies one of the main results of Anne-Marie Hanff's research: how people can live an active and self-determined life despite the disease – if you just ask them what they need.

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